A past president of the American Society of Transplant Surgeons
has gone public with a question often posed by many of his colleagues
in private: Why do some transplant centers only report survival
data for a relatively low percentage of their patients?
This survival data, collected by the United Network on Organ
Sharing (UNOS), which operates the nation's transplant network,
is made public each year to aid the 75,000 Americans waiting for
organ transplants in making choices among the nation's 270 transplant
centers.
Presumably, if every center reported survival data for virtually
all of its transplant patients (a small number of patients move
without providing new contact information), patients awaiting
transplants would be able to make comparative judgments about
success rates.
A person needing a kidney transplant in Florida, for example,
might be interested in the fact 95.1 percent of those who had
such a transplant at the University of Miami Transplant Center
still had their new kidney functioning at the end of one year,
compared to 89.2 percent at Florida Hospital Medical Center in
Orlando.
As it happens, both the University of Miami and Florida Hospital
Medical Center reported survival data for 99 percent of their
kidney transplant patients, facilitating a valid comparison.
But what about the person needing a kidney transplant in Chicago,
who tries to compare the one-year kidney survival rate of 87.9
percent at Rush Presbyterian St. Luke's Medical Center to the
86.2 percent reported by the University of Illinois in Chicago.
On the surface, it would appear that the rates are not very different.
But while Rush Presbyterian reported data for more than 99 percent
of its transplant patients, the University of Illinois reported
data for only 52 percent.
Hence, the question for anyone considering the University of
Illinois: If it had reported data for virtually all of its patients,
would the kidney survival rate for its patients be better -- or
worse?
Until now, no one has spoken out publicly about this problem.
But Dr. Hans Sollinger, director of the transplant program at
the University of Wisconsin, one of the nation's largest, publicly
complained about the incomplete reporting in an interview with
the Milwaukee Journal Sentinal.
"I'm going to write an article to one of the medical journals
about the accuracy of reporting," Sollinger said. "
Reporting requirements have to be uniformly enforced across the
country. The centers are not complying and perhaps there should
be some penalty."
The University Renal Research and Education Association (URREA),
which now has the federal contract for publishing the data collected
by UNOS, said that "we of course are concerned" about
centers providing only partial information.
"But we are not the policeman," said URREA President
Philip Held.